Shopping Cart
Your Cart is Empty
Quantity:
Subtotal
Taxes
Shipping
Total
There was an error with PayPalClick here to try again
CelebrateThank you for your business!You should be receiving an order confirmation from Paypal shortly.Exit Shopping Cart

Tyler's EB Awareness Inc

Life After Tyler

Blog

National EB Awareness Week

Posted on October 27, 2014 at 12:53 PM
Hi All- National EB Awareness Week is 10/25/14-10/31/14. Please make a difference. Like any EB page on Facebook and share with your friends. Ours is Tyler's EB Awareness. Share any EB website with your contact list. Email your local paper to write a story, email your local news station to run a segment. Spread the word about EB so that more will take interest. There needs to be more awareness so that a cure can be found. 
It was so frustrating watching 60 Minutes last night. They were talking about genetic testing and kept mentioning diabetes and different kinds of cancer--- WHAT ABOUT EB????? Mention EB for gods sake!!! UUUGGGHHH.
I understand that those diseases are terrible but have you seen an EB child. To watch an innocent victim suffer. It is horrible!!! Please make a difference this week. Make a donation to an EB organization or even share awareness. The more that know the better those kids will be! 

Categories: EB Awareness Week

Post a Comment

Oops!

Oops, you forgot something.

Oops!

The words you entered did not match the given text. Please try again.

13 Comments

Reply bestessays
4:09 PM on September 24, 2018 
We should spread the awareness. You were right, friend. You are very honest.
Reply
5:12 PM on October 1, 2018 
Thank you.
Reply best uk writing services
4:01 AM on November 14, 2018 
We will make a difference together. I believe in that. What about you?
Reply ukbestessay
9:07 AM on January 18, 2019 
I always participate in National EB Awareness because it is really hard to have this kind of disease. We cannot also cure them, but we can share some donations that they need in order to make life more convenient. We do not know what they really feel, but we can lessen the bad things that they are experiencing. We are blessed that we do not experience this. Let us make ourself a blessing to people like them just to let them feel that they should fight for their life.
Reply essay writers sydney
2:54 PM on April 23, 2019 
bestessays says...
We should spread the awareness. You were right, friend. You are very honest.

This type of diseases is in need to have a massive increase of awareness to all the people. There is a lot of diseases right now and it kills a lot people in the community. Hopefully this type of cause celebrating EB awareness week will be a useful to everyone. Many families are suffering with so much pain not just in financial curing the disease but of course emotional and physical burden. There is many advocacy that wants to cure the disease and we can be part of it.
Reply Trisha
6:04 PM on June 5, 2019 
bestessays says...
We should spread the awareness. You were right, friend. You are very honest.

Thank you!
Reply Trisha
6:04 PM on June 5, 2019 
[]
Thank you.
[/]
No thank you for your time.
Reply Trisha
6:05 PM on June 5, 2019 
best uk writing services says...
We will make a difference together. I believe in that. What about you?

I hope so...
Reply Trisha
1:25 AM on June 6, 2019 
ukbestessay says...
I always participate in National EB Awareness because it is really hard to have this kind of disease. We cannot also cure them, but we can share some donations that they need in order to make life more convenient. We do not know what they really feel, but we can lessen the bad things that they are experiencing. We are blessed that we do not experience this. Let us make ourself a blessing to people like them just to let them feel that they should fight for their life.

Thank you so very much for your EB advocacy! It is very appreciated.
Reply best essay services online
7:52 PM on June 17, 2019 
Epidermolysis Bullosa is a rare disease that has no cure. This disease is caused by easy blistering of the skin and to those who have fragile skin. It is important for us to know this certain disease to be aware of. “Prevention is better than cure.” So before this rare disease will strike us, it is important to be aware and know what will be the symptoms of this said disease. So let us all join this “National Epidermolysis Bullosa Awareness Week”!
Reply hobart plasma cutter reviews
11:42 PM on June 23, 2020 
Howdy! This article could not be written any better! Going through this article reminds me of my previous roommate! He continually kept preaching about this. I most certainly will forward this post to him. Fairly certain he'll have a great read. I appreciate you for sharing!
Reply what does premium do in roblox
4:13 PM on July 24, 2020 
Great article! Very informative blog. This was very helpful! Thank you so much for this!
Reply weber portable charcoal Grill
4:15 PM on October 7, 2020 
Be proud of the fact that you have the ability to rise above any situation and deliver the best no matter what the circumstances could be. Excellent article! Thank you for your tremendous efforts in this wonderful piece of work.