Tyler's EB Awareness Inc
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Life After Tyler
Blog
February
Posted on February 1, 2016 at 12:57 PM |
Feb 1st- I dislike this month. Have since 1997. We were all so excited back then. He was finally coming home after being in Nationwide's Children's for almost 4 months. He was finally back up to his birth weight being close to 6 months old. He was so swollen though, that's what I remember, his poor little body being so plump that it seemed he would be uncomfortable, but he was never able to tell us anything. Just those beautiful blue eyes, looking at us, feeling how much he loved us and me hoping that he could see how much I loved him!!! |
Categories: February
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1:46 PM on September 2, 2019
Taylor’s death has grieved us all. He was a victim of very uncommon and rare disease which finally took his life. His death has given you a great purpose to live with. I am glad to see you working on it very effectively.

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