Tyler's EB Awareness Inc
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Life After Tyler
|Posted on February 4, 2016 at 12:55 PM|
Ok my thoughts for today are so mixed. I remember that tomorrow starts the worst week of the year for me. And I am so discouraged by how long it has been and still how much of the struggle this nasty disease is. But I am torn, always torn because of that little glimmer of hope. Such a small word but it is so powerful. I never give up because of hope and my love for Tyler.
Ok so I guess for today let me just ask that everyone PRAY! Pray for no more suffering, pray for a major research break thru, pray for a CURE! #EBawareness #CureEB