Tyler's EB Awareness Inc
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Life After Tyler
|Posted on February 11, 2016 at 1:03 PM|
Ok so on February 10, 1997 the doctors determined from the test that was ran that Tyler's brain was still swelling. They told us that if he survived he would not be able to talk, to walk- he would have a hard time eating let alone feeding himself, he would have problems learning, he would have problems with seeing and hearing. UGH, I died a little listening to the doctors tell my brother and his wife. The doctors showed me the results because I was the one that did not care his condition, I was going to take care of him. They more or less said if he made it he would not have a life with all of the problems on top of his EB.
It was left to my brother and his wife (well now ex-wife) to make the decision if they were going to turn off the machines. All day on the 10th, Jason and I spent as much time with him as we could. Everyone that had been there over the last 4 days I think were taking the time to say goodbye except for him and I. I wanted to make sure he knew that we never gave up on him!!
They decided to turn off the machines because they felt that his life with God would be better than all of the suffering he would have here with us if he survived. It was decided that it would be 2/11/97 @ 8pm so we could have family make it in. I do not think I have ever cried more in my entire life than I did Feb. 10, 1997. I prayed that the next day would not come- but it did. Jason & I still did not talk about the end with Tyler- it was all positive! I was true to not giving up on him to the end.
Feb 11, 1997 : 8pm came and there were so many people there to say goodbye. Normally there were only allowed 2 people at a time in the ICU room but there had to have been 30-35 there at 8pm gathered around the bed of our precious butterfly baby. I had a couple more friends show up to support me. The nurse began unhooking everything, She got all of the wires taken off and my brother held him- passed him to his wife and she held him until he took his last breath, 11 minutes later. There was not a dry eye in the ICU, nurse tearing up, total strangers with family members in the ICU were all tearing up.
Tyler's doctor was there. Tyler was the first patient that he had ever lost. My heart was BROKEN.......