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Tyler's EB Awareness Inc

Life After Tyler



Posted on December 29, 2016 at 1:02 PM
Hi - I hope that everyone had a wonderful Christmas. I hope that the true meaning of Christmas was heard in your household. And I want to wish everyone a year full of blessings and miracles for 2017. I pray for everyone daily but especially for the EB community. May God bless us with a cure in 2017 so no more have to suffer on a daily basis whether it be kids, adults, family, caregivers.......
Tyler I will never give up, I will never stop praying, I will never forget! 

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7:33 AM on December 5, 2019 
My beautiful daughter is also suffering from the EB and now I am well aware how painful experience it is to watch our beloved one slowly dying in front of ourselves. I am suffering an intense pain and I cannot do nothing about it.
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