Shopping Cart
Your Cart is Empty
Quantity:
Subtotal
Taxes
Shipping
Total
There was an error with PayPalClick here to try again
CelebrateThank you for your business!You should be receiving an order confirmation from Paypal shortly.Exit Shopping Cart

Tyler's EB Awareness Inc

Life After Tyler

Blog

2-2

Posted on February 2, 2016 at 12:43 PM
Trying to relive this week so he is not forgotten. I ABSOLUTELY hate this week of the year!!!!
......so we were so happy that he was home. I think I was able to visit him once this week. I remember praying that some of the swelling from the steroids would go down and that he would eat. I did not want him to go back to the hospital. 
I wish I would have known what was coming. I know I would have spent every minute with him. And who knows, if I would have been there then she wouldn't have been. I know I am not the only person in Tyler's life who thinks that she had something to do with it. I guess only her, Tyler and God know the truth. I know that God has a plan for everything, but sometimes it is really hard to believe, to have faith without understanding. 
Even after 19 years I still do not understand why this little beautiful boy had to suffer the way he did and leave us so soon. Why other beautiful little kids have to suffer on a daily basis. Why the parents and siblings have to suffer everyday with the agony of this disease. I guess my thoughts for today is EB SUCKS!!!

Categories: February

Post a Comment

Oops!

Oops, you forgot something.

Oops!

The words you entered did not match the given text. Please try again.

5 Comments

Reply wizessays
2:10 PM on November 5, 2018 
The communicative thoughts and prepares about updating the understanding steroids praying the chances. The technical siblings and effective more disease for learning the teaching skills.
Reply Chicago Stem cell Therapy
7:26 AM on June 24, 2019 
This is really great information found here, I really like your blog. Thanks very much for the share. Keep posting.
Reply handmadewriting review
5:46 PM on September 25, 2019 
this is this kind of beatific resource which you are providing and you come back to an goodwill it away for forgive. I hero worship seeing weblog that acquire the price of presenting a mood useful resource for clean.
Reply vivienneswestwoodoutlet.co.uk
2:27 AM on November 13, 2019 
I know I am not the only person in Tyler's life who thinks that she had something to do with it.
Reply webstagram
7:59 AM on December 2, 2019 
Great post , I am so impressed to read your views which you have shared with us. and we also share site webstagram about instagram, please go to